it
can be so difficult to describe the depth and intensity
of pain, burn and itch that
can come all at once, close as I've come so far is to imagine, using the
thumb..... smashing the thumb, tying a band around wrist to slow
circulation [induce throbbing], then peeling the skin away while
spritzing with lemon juice, it really is just the most intense form of discomfort imaginable.
TOPICAL STEROID WITHDRAWL & AUTOIMMUNE DISORDER PLEASE scroll down - click on OLDER POSTS BELOW for videos of early days of TSW. There are thousands who have suffered, many more beginning the journey to healing. A journey filled with EXTREME anxiety, pain, craze making itch, burning, sleeplessness for days on end, oozing, scratching, the videos go through various stages and share. [TSW aka Red Skin Syndrome, Topical Steroid Addiction] VISIT: www.ITSAN.org RE:dangers of topical steroids
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Saturday, March 7, 2015
I have an extensive history going back to childhood, approximately 47 years. The list includes and is building as I recall more. Hydrocortisone .05%-1%+ multiple rounds of Prednisone, Diprolene Ointment, 0.05%, Diprolene Cream AF, 0.05% Flonase,steroid shot/wrist. Desoximetaone USP 0.25%,Kenalog Cream/Spray, 0.1%,Topicort Cream/Ointment, 0.25%
Here are some pics from past couple days, it's been tough, but the hot spring soak was helpful earlier in the day, not sure how much yet. It was too short a day as it was necessary to return home. I'll have update in photos post soak later on.
It can be so hard to express how painful this is, it goes beyond the surface, deep. All right, though sleep was better after soak, it was still too short & the urge to sleep is back, can't fight it.
Here are some pics from past couple days, it's been tough, but the hot spring soak was helpful earlier in the day, not sure how much yet. It was too short a day as it was necessary to return home. I'll have update in photos post soak later on.
It can be so hard to express how painful this is, it goes beyond the surface, deep. All right, though sleep was better after soak, it was still too short & the urge to sleep is back, can't fight it.
Wednesday, March 4, 2015
Another sleepless night, so counterproductive, how can one heal when one does not sleep and how can one sleep when one is not healing.
After posting a couple of overview videos what I may do here is post by the month progression of this journey. Who knows how long this will last, we're talking 40ish years of intermittent use of multiple varying strengths of corticosteroids, not to mention steroid injection, inhaler, Flonase nasal spray, pain patches, you name it, seems I unwittingly became a steroid junkie. I was never warned of such a thing.
After posting a couple of overview videos what I may do here is post by the month progression of this journey. Who knows how long this will last, we're talking 40ish years of intermittent use of multiple varying strengths of corticosteroids, not to mention steroid injection, inhaler, Flonase nasal spray, pain patches, you name it, seems I unwittingly became a steroid junkie. I was never warned of such a thing.
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