One of the most frustrating things is the insomnia, here it is coming up on 4:30am and sleep is still to come, though I've made efforts to get all comfy and then the ITCH. Though it's better than the sheer pain and burning of the past several days, it still interferes with sleep. My face flared for past week, past couple days seemed to be worse with not [only the sweliing, redness & burn but it started oozing clear fluid that began crusting over. Ok better sleep while the urge is strong.
TOPICAL STEROID WITHDRAWL & AUTOIMMUNE DISORDER PLEASE scroll down - click on OLDER POSTS BELOW for videos of early days of TSW. There are thousands who have suffered, many more beginning the journey to healing. A journey filled with EXTREME anxiety, pain, craze making itch, burning, sleeplessness for days on end, oozing, scratching, the videos go through various stages and share. [TSW aka Red Skin Syndrome, Topical Steroid Addiction] VISIT: www.ITSAN.org RE:dangers of topical steroids
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Sunday, January 25, 2015
Saturday, January 24, 2015
It's been a long long journey ...
The motivation for starting this blog posting came from the many many posts I have read/viewed over the past few months or so by others traveling the Topical Steroid road of recovery. This being ONE of the more challenging personal aspects of my life, which truthfully has been for the majority of my life, I've finally found the keys to moving forward.
Keys, yes a fistful of keys dangling from a ring. Now it's time to take them, sort through and use each one to open a door that leads to recovery.
This leg of my journey began about the last week of July 2014 following surgery... it seems it may run on for many more months to years, it's been a long long time coming. Being so ill for over two years now, it's encouraging to have that ring of keys, otherwise things would be hopelessly bleak. Now, however there is much work to be done.
That said, with so much work to be done, postings will be as they come, as there is time and as fatigue is overcome. My family doctor thought keeping photo journal was a good idea, so many photos may be posted, perhaps even more than dialogue for a time.
Keys, yes a fistful of keys dangling from a ring. Now it's time to take them, sort through and use each one to open a door that leads to recovery.
This leg of my journey began about the last week of July 2014 following surgery... it seems it may run on for many more months to years, it's been a long long time coming. Being so ill for over two years now, it's encouraging to have that ring of keys, otherwise things would be hopelessly bleak. Now, however there is much work to be done.
That said, with so much work to be done, postings will be as they come, as there is time and as fatigue is overcome. My family doctor thought keeping photo journal was a good idea, so many photos may be posted, perhaps even more than dialogue for a time.
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