💟 I’m so happy that my skin healed so well after enduring the hell experienced for 2-3 years following decades of topical steroid, corticosteroids, immunosuppressants. Except for celiac disease, ALL mystery autoimmune disorders are also a distant memory. What I do remember are many blood draws and interventions, threats to send me to some of the top medical providers in the country because I was dying.
I’m happy to be set free from enslavement to big pharma. I understand the desperation to want a “fix” but after going into [albeit unknowingly] TSW multiple times, once I learned what was happening I was mostly isolated for several months to purge my body of the poison within. I kept things simple. ICE bags to put out the fire and control of itch that tested the boundaries of sanity. I stayed hydrated with clean water, used cotton to make compression wraps over a blend of simple zinc balm [for ooze] and lemongrass balm. No junk food, plenty of protein and as much sleep as possible but we know how fleeting that can be at times. Bathing was difficult in chlorinated water. …
As healing improved, I would drive 90 minutes to spend day[s] soaking in outdoor hot springs pools. Contrary to what so many doctors counsel and I believe I took the leading of Dr Marvin Rapaport, I looked up and read everything he published I could find, found some excellent scientific articles [I hope to find one day] and learned what it must be like for women to go through menopause, as it was only time in my life that my hormones went wild and experienced hot flashes and so many things that are difficult to imagine. My skin was so thin that at one point it basically just fell off my face, there is a photo down there somewhere.
As bad as some images are, sadly I didn’t capture the worst of the worse, looking back it’s too bad. My face was beyond recognition and deeply horrifying for others to see, so few did.
My journey began last week July 2014 I believe, so coming up on a ten year anniversary.
