I’ve been busier than ever and have been freed from the evil within. I can not say for a certainty that is 100% the case but easily high 90s seriously. I have not had a flare for years now. I’m still aware of what comes into and onto my body but over time the anxiety has greatly diminished.
MY JOURNEY
TOPICAL STEROID WITHDRAWL & AUTOIMMUNE DISORDER PLEASE scroll down - click on OLDER POSTS BELOW for videos of early days of TSW. There are thousands who have suffered, many more beginning the journey to healing. A journey filled with EXTREME anxiety, pain, craze making itch, burning, sleeplessness for days on end, oozing, scratching, the videos go through various stages and share. [TSW aka Red Skin Syndrome, Topical Steroid Addiction] VISIT: www.ITSAN.org RE:dangers of topical steroids
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Sunday, December 17, 2023
Monday, May 30, 2022
In a nutshell, overall skin healed 100% , still an autoimmune disorder affecting hands, turning my focus to healing autoimmune disorder and brain trauma issues. I will come back and post, it’s so hard, much more so after Covid-19. I’m probably going to start separate blog for that content.
Monday, September 13, 2021
Tuesday, May 19, 2020
Update: May 2020
October 2019 travel when my beloved step-mom 'mom' passed away. [top right]
Sunday, August 13, 2017
August 2017
my hair keeps growing!!!
for my entire life since childhood on steroids my hair would never grow past mid back, it's now longer than pictured here. June 2017
Below: today 08/13/17, no makeup, still doing well, a small area at jawbones and hands mostly right ring finger area that is healing up. This is a tough time, the 2nd of my 4 boys died suddenly 2 weeks ago and I had dental surgery yesterday. Skin holding up much better than it ever would have in past during such stressful times. I can attribute the flare to 'meat' that must have had hormones which is when it happens.
my precious and beautiful son gone at 31
August 2nd I got the worst imaginable news
of the sudden death of my son. Though one
of the most unimaginable heartbreaks of
my life, I'm not left without hope that one
day he will live again. This is the promise
afterall.
Friday, April 29, 2016
A Break!
After over a year of intense withdrawal from topical steroids this was so encouraging. Healing comes.
Monday, March 21, 2016
Friday, December 11, 2015
Sunday, August 30, 2015
Saturday, May 30, 2015
Tuesday, May 5, 2015
Monday, May 4, 2015
Saturday, March 7, 2015
Here are some pics from past couple days, it's been tough, but the hot spring soak was helpful earlier in the day, not sure how much yet. It was too short a day as it was necessary to return home. I'll have update in photos post soak later on.
It can be so hard to express how painful this is, it goes beyond the surface, deep. All right, though sleep was better after soak, it was still too short & the urge to sleep is back, can't fight it.
Wednesday, March 4, 2015
After posting a couple of overview videos what I may do here is post by the month progression of this journey. Who knows how long this will last, we're talking 40ish years of intermittent use of multiple varying strengths of corticosteroids, not to mention steroid injection, inhaler, Flonase nasal spray, pain patches, you name it, seems I unwittingly became a steroid junkie. I was never warned of such a thing.
Tuesday, February 17, 2015
02-13-15 [what a difference a couple days can make]
and some good cover up doesn't hurt, but mostly healed. [02-18-15] It was short lived but will take all I can get.
Seems that stress truly is responsible for this outbreak, as my face
was pretty clear the evening prior, my son became agitated with me
and I slipped on eating 'wheat' containing food, seems to be making
a difference to avoid not only gluten but all wheat. An experiment in
the works.
a connection - Topical Steroid Withdrawl aka TSW, Topical Steroid Addiction, Red Skin Syndrome - Autoimmune Disorder-Leaky Gut- phBalance [think of an aquarium] Sleep disorders.... and more click link below for a short journey through recent effects .....
Link below to a short video featuring more recent journey through TSW
Month SEVEN
It is hard to realize that when the pain is so unbelievably intense. There have even been times I've looked at my hands and wondered, my word, HOW can you feel so much pain radiating with heat but not the fire of a few months back.
I should be fast asleep, my body needs the rest for healing but the itch has kept me awake, the thickness of the skin on my face has returned with red like a burn. WHERE does this come from? My thumb is the worst now and so slow to heal, one day it will but for now it's a tease. One day I awake and it seems to have improved but then I see this really is not the case.
Compression gloves have been helpful but can not wear them on my face. Some days I use fresh aloe vera to cool my skin, on nights like last a bag of ice for my hands through the night. Oh and somehow after all these months there was a leak of icy water in the night around my pillows, though I was too tired to fully care.
It is difficult of course to see from photos but the pain in hands is nearly indescribable 02-16-15
Sunday, January 25, 2015
Saturday, January 24, 2015
It's been a long long journey ...
Keys, yes a fistful of keys dangling from a ring. Now it's time to take them, sort through and use each one to open a door that leads to recovery.
This leg of my journey began about the last week of July 2014 following surgery... it seems it may run on for many more months to years, it's been a long long time coming. Being so ill for over two years now, it's encouraging to have that ring of keys, otherwise things would be hopelessly bleak. Now, however there is much work to be done.
That said, with so much work to be done, postings will be as they come, as there is time and as fatigue is overcome. My family doctor thought keeping photo journal was a good idea, so many photos may be posted, perhaps even more than dialogue for a time.